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Topic: I’m terrified that I have MS

  1. that guy
    that guy avatar
    0 posts
    18 November 2019

    Hello Everyone

    i have health anxiety and I’m currently going through my worst attack right now. It all started about a month ago, when my muscles started twitching and pain that felt like someone was poking me with a needle. My arms and legs were also feeling like they were tired. These symptoms would come and go, and wouldn’t last too long. After a blood test about 2 weeks ago, I was diagnosed with Glandular fever, which made me feel better that it wasn’t serious, and the symptoms died down.

    However on Wednesday the symptoms came back, and now I’m also light headed, with some headaches and even my eyes have been hurting, along with itching all over my body, these symptoms are usually worse in the morning. my brain has gone from Calm, to full on anxiety mode. And of course I looked on google to try and get some reassurance, and it told me that I had MS. I’ve seen how MS can affect people, and I’m terrified now.

    I don’t know if it’s worth going back to my doctor as I think she may say it’s just the glandular fever, but honestly I don’t know what to do, my Parents are dismissive, I don’t see my psychologist for another month and a half and I gotta go to work today. I feel like I’m stuck between a rock and a hard place.

    sorry for the rant, but thanks for reading aswell

  2. SCoo
    SCoo avatar
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    18 November 2019 in reply to that guy

    Hey.

    hope you are doing ok.
    I always go to the doc if I’m concerned about things.

    I have recently tried to stay of google as every time I would look something up I would go on a clicking frenzy and become somewhat obsessed about diagnosing myself.

    1 person found this helpful
  3. romantic_thi3f
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    romantic_thi3f avatar
    382 posts
    19 November 2019 in reply to that guy

    Hi that guy,

    Thank you for your post and I'm glad that you're here. I'm sorry that you've been experiencing these symptoms and I can imagine how distressing it would be being convinced it's MS (or any chronic type illness).

    I don't see any harm in going to the doctor, especially if you think it will put your mind at ease. Even if they do say that it's glandular fever, at least then you will know for sure.

    One thing that might be worth knowing though is that a lot of the symptoms for MS can also double up as anxiety (tingling, numbness, fatigue, dizziness, pains).

    If you're interested, Mindspot offer free online courses on anxiety (with support of a psychologist) and CCI NSW have some printouts that you can read (written by psychologists). I was thinking that if you're open to it, it might help tie you over until your next appointment.

    RT

    2 people found this helpful
  4. Samfromwa
    Samfromwa avatar
    0 posts
    21 November 2019 in reply to that guy
    I'm going through the same exact worries. Googled and it said ms. I have anxiety issues also. I saw a neurologist. He says it's stress anxiety. I get weird shocks in my feet but only twice that last a second. Pins and needles a crawling sensations, hands and feet. Neuro did the clinical ms test, said I don't have it but to help me with my concerns booked a brain and spine mri to check. I get results on the 3rd of December. I know exactly what you're going through and it's hard but maybe a mri might make you feel better. I've hears of others getting these type of issues because of stress anxiety.
  5. Samfromwa
    Samfromwa avatar
    0 posts
    21 November 2019 in reply to romantic_thi3f
    Hey romantic. When you say a anxiety can double up, do you mean some of the symptoms can mimic ms symptoms of ms. My neuro thinks it's anxiety sensory issues for me and not ms.
  6. that guy
    that guy avatar
    0 posts
    21 November 2019 in reply to romantic_thi3f
    Thanks for your reply, I've made an appointment with my doctor on Monday! The good thing about her is that she is fully aware of my anxiety issues. I may have to go back on medication, but honestly as it helped me a lot last year, that's something I'm seriously considering.
    I did some more digging around and it seems that Glandular fever seems to knock people around a lot, and Post viral can be even worse! I'm hoping this is the case at least. I got a good nights sleep last night, so for once I'm not too tired!
    The past couple of months has also been a stressful time due to dealings with Centerlink. This was when I noticed some symptoms start
    The internet is a scary place sometimes! Especially to anxiety sufferers.
  7. that guy
    that guy avatar
    0 posts
    21 November 2019 in reply to Samfromwa
    Good luck with your MRI mate. I dunno if my Doctor will send me to a Neurologist, but i'll find out on Monday, I'm just hoping its just Stress anxiety or part of the Glandular fever, I've never had all these symptoms at the same time and its scary. Glandular fever has taken a huge toll on me, and it also could be that my body is reacting to that, i'll find out more on Monday, wish me luck!
  8. romantic_thi3f
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    romantic_thi3f avatar
    382 posts
    22 November 2019 in reply to that guy

    Hi samfromwa,

    Yes that's exactly right. :)

    Often when people think of anxiety symptoms they think of worry or panic attacks - but it's so much more complicated! Even though it might be weird to hear, it does make sense if all the symptoms could be put down to anxiety rather than MS.

    RT

    1 person found this helpful
  9. romantic_thi3f
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    romantic_thi3f avatar
    382 posts
    22 November 2019 in reply to that guy

    Hi that guy,

    Oh that's great news - I'm glad that you could get in so soon with your GP. Also really glad to hear you got a good nights sleep! That sure helps.

    Yes that makes sense. Glandular fever knocks the body around as is, let alone dealing with Centrelink on top of all of that.

    Hopefully your GP gives you some reassurance. If you want to, I'd love to hear how you get on Monday.

    RT

  10. Lolly55
    Lolly55 avatar
    0 posts
    22 November 2019 in reply to Samfromwa
    Yes I get those weird neurological tingling and numbness type of feelings from my anxiety and have done for many years on and off. I am particularly anxious at the moment about my health and that's what most of my anxiety is about. But I have just been told I have 2 brain aneurysms and now I'm thinking that all those symptoms are from that. But Im pretty sure it's my anxiety in overload. The symptoms are real but they come and go and I keep trying to tell myself if it was more than just my anxiety it would be there all the time. The more you think about it and keep looking out for the symptoms the more they come. It's a vicious circle.
  11. that guy
    that guy avatar
    0 posts
    22 November 2019 in reply to romantic_thi3f
    Count on it! I'll defiantly let you know


  12. that guy
    that guy avatar
    0 posts
    22 November 2019 in reply to Lolly55
    Ugh that's horrible, this is really the first time I've ever gotten symptoms like these so of course this is really scary for me, I can't imagine having these symptoms for years, I admire you for that.
    Yeah that's the thing for me, these symptoms come and go and only last a second or two, but it just feels so real! I actually had some chest pain today, which I know is from all the worrying!
    Health Anxiety just sucks sometimes!
  13. that guy
    that guy avatar
    0 posts
    26 November 2019 in reply to romantic_thi3f
    Well my Doc immediately ordered another blood test. this time checking for deficiencies and thyroid,other virus and stuff (She ordered a lot) but at this point, she doesn't think its Neurological, but honestly I don't think i'll be able to relax until I get an answer
  14. romantic_thi3f
    Community Champion
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    romantic_thi3f avatar
    382 posts
    27 November 2019 in reply to that guy

    Hi that guy,

    I appreciate you checking in as I was wondering how you were getting on with your GP.

    Seems like she is being very thorough in all those blood tests. Honestly I am glad that she is, because it means that with the diagnosis of health anxiety, everything else has already been ruled out (which kind of saves repeat doctor trips!). I do get though that you can't relax yet.

    When is your next appointment?

    RT

  15. that guy
    that guy avatar
    0 posts
    28 November 2019 in reply to romantic_thi3f

    Yeah, like I said she is very aware of my anxiety, Now I just gotta wait for my blood test results, hopefully it'll be sooner rather than later. If there;s something with the blood tests, she'll give me a call to come in like last time

    I feel like I'm at a stalemate atm, On one hand if the blood test doesn't come up with anything, then what am I going to do? And on the other hand, if there is something then how bad is it going to be? ugh, just thinking about it is giving me a headache!


  16. Cat67
    Cat67 avatar
    1 posts
    28 November 2019 in reply to that guy

    Hi That guy,

    Well so far in a year, I've had a brain tumor, melanoma under a toenail, MS, CFS, Eye cancer and various other things too numerous to mention....all because I consulted Dr. Google! Big mistake. I even convinced my dr to send me for a CT brain scan last year, and guess what? No brain tumor! Nor any of the other things either.

    Hang in there! You are not alone. Health Anxiety is the PITS. You worry about every little sign or symptom and it's always nothing. My family think I'm hysterical as every time I get anything I think I'm dying. I've started to just say now...so what....what if I am dying? Something's got to get me in the end!

    Anxiety can also give you like 101 symptoms that appear like they're something else. Like the heart palpitations. I had a stress test....perfect results....ECG...perfect again. So it's gotta be anxiety.

    Do you worry about a serious illness, then you find out you DON'T have it, so you just start worrying about another serious illness instead? That's what I do. One worry just replaces the other.

    I hope all your tests come back fine..I'm sure they will.

    Good luck. Start laughing at yourself. Sometimes it's the only way to get through.

  17. romantic_thi3f
    Community Champion
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    romantic_thi3f avatar
    382 posts
    29 November 2019 in reply to that guy

    Hi that guy,

    That's great to hear, hopefully your next appointment is soon so you can find out for sure.

    If it doesn't come up with something and your GP lets you know that this is just anxiety, do you think that this will be something you can accept? It might sound like a silly question, but often the diagnosis of anxiety doesn't fit well with them, so they'll work to find other answers that will (even if they are none out there!).

    If it does come back with something, well - I'm guessing that's pretty unlikely - that's unfortunate. But you will cope. You have your GP who sounds like she is very supportive, and with her you'll find a way through this.

    I know that it's really hard to be waiting in that loop, but see if you can try and trust in your GP to give you the answers and show you the best way forward.

    RT

  18. that guy
    that guy avatar
    0 posts
    29 November 2019 in reply to Cat67
    Hi Cat67, thanks for commenting

    I know the feeling, somehow we know that google is always going to give us the worst possible answer when we search, but yet we still do it, some of my favorite results based on symptoms I had in the past were Brain Tumor, Colon cancer and a heart attack!

    I got a text about discussing blood test results today, so I've booked an app for Tuesday morning, part of me is hoping that nothing is wrong, but the other half is hoping that there is so I can figure out whats wrong and get it treated. I don't think I'll be able to fully relax until I know exactly what is going on!
  19. that guy
    that guy avatar
    0 posts
    29 November 2019 in reply to romantic_thi3f
    Hi again RT

    Got a text from my doctor about discussing blood test results, so app is booked in for Tuesday. I guess its not so serious because people have told me if it were, they would've gotten me in ASAP.

    Tbh I do not know how i'll react if my doc tells me if its anxiety, especially since these symptoms have been scaring me a lot. But the good news is that some of them seem to be dying down a bit, I dunno if they'll keep on going away, but at least I have been able to get past these last couple of days without much issues. I guess i'll go to my app on Tuesday and see how things go from there.


  20. Samfromwa
    Samfromwa avatar
    0 posts
    29 November 2019 in reply to that guy
    I'm getting like a sharp pin feeling for a second in my feet. Weird type of tickling and tingling that comes and goes moves around between the feet, toes. Crawling, tickling below my wrists on the flexor. I had a itch below my wrist every morning for 2 months, that went away. These symptoms have lasted a month. It's worse when I'm in the car. I had all bloods done, it has nothing to do with bloods though, it's all clear. I did the google thing and it told me ms also. I also have heard that anxiety can cause this. Ive had to wait 3 weeks for mri results of brain and spine. I'll know in a few days. The results are in but I'm too scared to look at them, I rather the neuro does and interprets them as I don't want to interpret them wrong and send myself insane. these are sensory issues but anxiety can cause strange strange sensations which I've dealt with before in my mouth.
  21. that guy
    that guy avatar
    0 posts
    3 December 2019 in reply to Samfromwa
    Hey Samfromwa, did you ever see your results?

    I just got the results of my blood test, AUTOIMMUNE IS NEGATIVE, which means it's very likely not MS and rules out a lot of other serious possibilities. Glandular fever is also gone BUT my doctor says I'm in the post viral stage, and that can last for months. I am also having a vitamin d deficiency, so she has gotten me on supplements for that.
  22. Samfromwa
    Samfromwa avatar
    0 posts
    6 December 2019 in reply to that guy
    Blood test only rules out inflammation caused by autoimmunes like rheumatoid athiritis but I heard some people get ms through the blood, I don't know if blood tests pick up on that. I had a mri head to toe. No lesions. It wasn't with contrast though, he didn't feel the need. Nothing came up, he says I don't have ms but I still worry about it. He thinks it's from stress and anxiety. But I get the itch and the sensations, no numbness or optic neuritis. You can also get a lumbar to check spinal fluid for ms. Sometimes ms doesn't even come up on mris or anything for years. Your symptoms are more in line with neurological anxiety. I mean I have no choice but to beleive I don't have it and monitor it for the next few years. Im happy the results were clean though but the symptoms are still happening, 50% less though which is something to be hopeful about.
  23. Johnny_
    Johnny_ avatar
    1 posts
    20 December 2019 in reply to that guy

    Hi That guy,

    I read your story and I can relate to you as I am going through the same thing right now. When this happened google told me it was ms too which freaked me out and triggered off my anxiety. I didn’t know what to do and saw the doctor.

    My story- I had glandular fever about 12weeks ago( didn’t know at the time) but thought it was just a throat infection, recovered in two weeks then about 6 weeks ago was hit really hard with fatigue etc

    I was bed bound for 5 days, barely enough energy to do the basics at home. I was fatigued, had muscle aches, weak legs, tingling forearms and forehead, loss of appetite, chest pain and slight dizziness.

    I went to the doctor and after an ecg/X-ray/blood test was told everything was normal but I recently had glandular fever and my liver results were a little high which is normal for glandular. I also suffer mild anxiety.

    Doctor said its the post viral affects of glandular fever and it will take 2-3months to get back to normal, possibly longer.

    ill admit...the first two weeks were the worst and all the symptoms reduced significantly by the third week but the fatigue is holding on which is what I was told but again was told to take it slow however a couple of days ago, I relapsed and I’m almost back at square one.

    Like you I think it’s ms but I am yet to investigate as I remain hopeful it’s just glandular fever which fingers crossed I recover from with rest.

    i can only suggest to be patient as all the people I’ve spoken too say glandular took 2-3 easy before getting back to normal and fatigue a couple of months after that

    stay positive and I look forward to seeing how you go.

  24. Samfromwa
    Samfromwa avatar
    0 posts
    20 December 2019 in reply to Johnny_
    Glandular fever must take a toll on the body that the shock from it causes physical anxiety. I get physical anxiety and Ive had another sensory issue 5 years ago. It was globus hysteria(one name for it) I was fasting, not sleeping well, stressed and I'd always had anxiety without addressing it. It was a sensation of hair in my mouth, tounge and throat, can be like a intrusion type of feeling in the throat for others but it's a pyhschological sensation either way. Took meds to calm me down, took few months and it's never occurred 5 years later. Now I'm getting ms type sensations in my hands feet for 2 months. Seen a neuro, mri brain and spine, clinical test also, he pricks the nerves around body, eye test, movement. They say it's not ms, so now I've been prescribed a type of low dose medication to calm down my anxiety from my gp for the first time and resting, it's a lot better. Can be random but it's 100% physical eg if I don't eat enough during the day it gets worse. I believe physical anxiety is the culprit for sensory issues. Can happen to anyone and I personally know similar cases with healthy non anxiety sufferers who devolop sensory issues for a few months due to a traumatic experience. I have tried a few anxiety meds that my gp prescribed over 5 years, they never work for me. I'm a physical anxiety sufferer, it's from a genetic disorder of the bodies connective tissue, called edhlers danlos syndrome. That's why most type of anxiety meds don't work for me because it's not so much pyhscogical. I get anxiety all day everyday but I can function because I think it's adrenaline induced because it's physical. In conclusion when the body is run down or gets a shock from the immune system, stress, poor diet, fatigue or more commonly in combination can cause sensory issues. I was convinced of ms. If anyone reads this, the neuro consult is always the right choice. Do not self diagnose, do not Google. Do not Fb group every ms group. Its a never ending anxiety roller-coaster. You need assurance, go get it. Ask to see a specialist and get a 2nd opinion if needed.
  25. Johnny_
    Johnny_ avatar
    1 posts
    20 December 2019 in reply to Samfromwa

    Hi Samfromwa,

    thankyou for sharing your story with me, it’s greatly appreciated.

    your story gives me hope that’s its not ms and it could be something else that I may be able to treat and live a normal life.

    it really does make sense what you said about how the body reacts when it’s fatigued. when this first happened 6 weeks ago my emotions were all over the place and the physical symptoms of anxiety were crazy which settled after a week or so.

    thankyou again for replying:)

  26. Nyny94
    Nyny94 avatar
    0 posts
    21 December 2019 in reply to that guy
    Hello,
    I'm new to this as well while I may not know the affects or symptoms of glandular fever or MS I do know what it's like to have health anxiety. I have a few people in my family that passed from cancer and I became preoccupied with the idea that I was dying possibly, it took me sometime to realize that Google was not my friend and while it was scary getting tests I too came up healthy. Sometimes anxiety can also cause a range of strange and scary symptoms, it helps to rule out any symptoms your mind might be creating with your Dr. I find it eases my stress to ask myself it maybe it's my mind first causing my body to react. I'm not sure if that helps but I find for me , majority of the time my mind has alot to do with strange symptoms I get from time to time
  27. calmseeker
    calmseeker avatar
    5 posts
    21 December 2019

    Hi Everyone,

    A fellow health anxiety sufferer here also. Suffering with GAD, Depression and PMDD for well over a decade. This year my anxiety went in a different direction, in the health anxiety direction and its not nice. This was triggered by a pituitary tumour finding in March (apparently common and small and not causing any symptoms, but it still scary to know its there). That triggered my brain into anxiety overdrive. Then the 'googling' began. Every sensation and physical symptom I had I started to research. Its just too easy this day and age to do so with so much info at our fingertips. So in my mind my forgetfulness and cloudiness = early onset dementia. My tingling and numbness = MS. My stiff muscles and soreness + MND. My constant ocular migraine = pending stroke, the lists goes on, sigh. I feel I am in constant battle with health anxiety.

    So a couple of helpful tips I have picked up along the way which others may find useful too. Believe that all these symptoms are indeed anxiety and anxiety can be treated and managed. Secondly, Dr. Google usually gives worst case scenarios. I tell myself to believe these tips and sometimes it helps and sometimes it doesn't. Any other coping skills for severe health anxiety would be very much appreciated.

    At this point I cant seem to go back to my GP for help, I feel a bit stuck. I fear of any further testing after the tumour finding. I get into a terrible anxious state for the few days I wait for test results, the "what if" scenario plays over and over in my head. Sort of counter productive as it would be nice to know that all the horrible symptoms I have are down to something simple like a magnesium deficiency or high estrogen or something, but the stress of going to the GP is too much and I cant bring myself to make the appointment.

    Sending calm vibes and understanding to all others suffering with health anxiety.

    CS

  28. that guy
    that guy avatar
    0 posts
    22 December 2019 in reply to calmseeker

    Wow, this post really blew up since I last came on here.

    Hi Johnny, thank you for your reply, its nice to hear from someone who also have the same illness as me. I’ve had a theory that Glandular fever tends to put a lot of strain on the body internally. It still puzzles me how I caught it, but while I was suffering from it, I was also struck with a bout a gastro, and that puts even more strain on the body, I lost 5kgs from it, gained a few back though. But have not felt the same since, and it’s been 5 weeks.

    ive sorta dies down from the MS fears a bit in the past month, mainly because I don’t have the most serious symptoms (optic neuritis, tingling, numbness etc) but I’ve had mostly strange sensations like pain that feels like I’m being poked by a needle, burning or a cold burn feeling in my legs, headaches, fatigue and the muscle twitches, oh god they are the most common for me! (Although apparently the twitches are not that common with ms)

    It turns out my sister also suffered from Glandular fever which later turned into Chronic fatigue, so post viral fatigue seems to be normal. While the fatigue seems to be constant, all my other symptoms seem to come and go now. In fact the fatigue has been more in the past couple of days, ever since my chest started feeling tight. Of course it’s worrying me, but I’m hoping with just a few days of rest it will help

  29. Johnny_
    Johnny_ avatar
    1 posts
    23 December 2019 in reply to that guy

    Hi that guy,

    Its great to hear from you and that you have been improving, it’s great news! Sounds like as the symptoms relax that your fear of ms reduces too, I’ll admit, I’m the same.

    I too thought the same thing that it’s nice to speak to someone going through the same thing. Our stories are similar with what we are both going through.

    I have that theory too. Like you I’ve heard glandular hits the body physically really hard which can trigger other emotions such as anxiety. When this happens you get the symptoms of anxiety too while your body is in that state but normally fades away once the body starts to heal. I guess our emotions are enhanced due to the body being fatigued.

    My anxiety normally is not bad at all but during the early stages of this just went through the roof as well as my emotions for no reason and again through this relapse but has come down im the last day and should get a little better each day from now.

    i guess a tip I can pass on, get heaps of rest and only use about 70% of your energy. I think maybe I pushed too much to get back to normal which is why I replaced.

    I think your twitches etc will settle soon, that could be just anxiety symptoms like me and can be medicated if need be until your energy starts to return, this what my dr told me. Currently I’m not taking anything.

    It good that you can talk to your sister as she went through it so her story will give you confidence as you recover. Is she better now? it’s rare but some people end up with chronic fatigue syndrome, normally if your energy slowly improves, generally it means you will get to normal but still it takes time as like you said, post viral fatigue has an unknown time period of 3 - unknown months, most are 3-6 atleast from a couple friends I know who have had it.

    They got it when they were 18 so recovered in 3-4 months, I’m double that so it could be longer depending on your age and health.

    keep going forward, your doing fantastic and know beyond blue is here anytime :)

  30. that guy
    that guy avatar
    0 posts
    26 December 2019 in reply to Johnny_

    Hey Johnny thanks for replying

    i just turned 27, and I was shocked when I had the diagnosis of the fever, what was really odd, is that I didn’t have most of the symptoms, it all started from a viral infection.

    so I’ve been doing better these past few days, the fatigue has really died down a bit, still slightly tired, but I can get through the day easily now, I even decided to go out for a jog today, which is something I haven’t been able to do for months now. My dad suspects that the lack of exercising is contributing to the fatigue and symptoms.

    the muscles twitches have also died down a bit, it only seems to happen when I’m in a certain position, or if my elbow is on a certain location now, it only seems to be my upper legs now that twitch.

    the burning feeling in my muscles is also still these, however it has also decreased a bit

    im kinda glad that the symptoms are getting better, but I’m also worried that they could also return, especially since I’ve gotten more hours with my job starting next year.

    one thing that has helped me after all this is keeping a journal and record everything, symptoms, how your feeling, all your worries etc, its good to just get it out of you, and if you’ve got no one to talk to, you can just write down your feelings etc, plus it’s also keeping a record of symptoms for when you go to the doctor.

    hopefully your doing better Johnny and anyone else who reads this.

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