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Topic: struggling with special needs children

  1. Birdy77
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    19 February 2020 in reply to Matchy69
    Dear Mark,

    You sure have a lot on your plate.

    The challenges you face on a daily basis are huge, i am wondering if you have any support yourself, and make time to care for your own needs?

    Does your son have a support worker at his school, or is there just the teaching assistant for the whole class? Do you think he needs some extra support at school? I hope he has continued to use the toilet, what a terribly difficult challenge for you.

    The school merging the classes will no doubt be another disruption as he doesn't do well with change. I hope they have some strategies in place to help that transition for him.

    Did you make that cake for your daughter's birthday? It looks lovely, i hope you had a nice time celebrating her 16th.

    I hope today is a good day Mark.

    🌻birdy

  2. Matchy69
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    19 February 2020 in reply to Birdy77

    Hi Birdy,thanks for your reply.The merging of the two classes was complete disaster for my son on the monday when i dropped him off took him into the classroom he noticed the bigger desk and grade 4s in his classroom and had a complete melt down.I left him with the special needs teacher but 10 mins later she rung to come and get him.I had forgotten to remind him all weekend about the change even though the school had told him and prepared him for it.Yesterday he had a better day and got an award for a story and lasted until 2pm when they rung to pick him up.At the school he has a special needs teacher working with him and hasa teachers aid usually the same one who he has since prep.I dont myself get any support just what the kids get from psychiatrist,speech,physio,OT ect.Always an appoitment for one of them.He has still been using the toilet which is a good thing but i know he can revert back to not using it.

    My son use to have one on one with his learning and was in a room with just one of his teachers aid or special needs teacher and he would go to the classroom when they thought he could handle it and really do good with this system and then they just stopped it and i asked the principle why and he said the state government new regulations want all kids in the classroom together even ones with special needs as it will be better for them according to them but it has been harder for my son.

    Yes i made that cake and it was yummy.I always make cakes taste so much better then bought ones.I have my sons to make in 3 weeks.

    Take care,

    Mark.

  3. Birdy77
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    19 February 2020 in reply to Matchy69
    Hello again Mark,

    That's really unfortunate that the merging was a disaster. Does your son use a lot of visual tools and do you use them at home?

    That's very cool that he won an award for his story, do you think he felt proud of himself? I hope it brought him a good feeling.

    It's so hard isn't it, when they make blanket rules for everyone, without taking into account individual learning styles and behavioural/cognitive/emotional issues. Of course it all comes down to funding, but it would be better if there was some flexibility.

    At least he has had the same teachers aide since prep, that is really good for continuity.

    Yes, i know his toileting behaviours could change at any time, so enjoy this time and fingers crossed! My good friend's son has high needs Autism and toileting has always been ... "interesting". Have you seen The Black Balloon? There's a toileting scene in that which is quite familiar!

    Absolutely, home-made cakes are always better, esoecially because there's an ingredient in there that you don't find in the store-bought ones: love.

    How has your daughter been this week, better? Does she have friends at school?

    I am sorry to hear you don't have any supports for yourself. Are there support groups fir parents that your son's therapists could put you in touch with?

    What about taking care of yourself? I know yiu like to bake, whuch is a wonderful self-care activity, and exercises your creativity as well. What about other things, like going for walks, or other sorts of exercise, taking time out for yourself? I think i read somewhere that you ride a motirbike, so that is a good you-time thing.

    It's imlortant you take care of yourself.

    🌻birdy
  4. Matchy69
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    19 February 2020 in reply to Birdy77

    Hi Birdy,we use to use visual aids and the school did as well but really havent used them for 12 months or more.He was proud of his award yesterday and excited.

    No i have never seen the Black Balloon.I will have to see if i can find it.

    My daughter didn't go to school yesterday but managed to go today though didn't want to.She seems to have a big group of friends at school but she dosnt talk to any of them,she never talks to anyone at school with her selective mutism.She only talks to close family.

    I try to go for a motorbike ride when i get a chance.I get so exhausted from the kids.I been trying to clean up some of the water damage i hae had from all the rain we had last week.

    Take care,

    Mark.

  5. Matchy69
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    21 February 2020
    The school rung me to pick my son up early 12:30pm as he had enough for the day.He was behaving he had a really good morning but was tired.The promblem is it is the medication he is on but if he isnt on that medication he wouldnt last 5 minutes at school.We have tried every medication and combination available and this is the only one that works.
  6. Matchy69
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    22 February 2020
    My son is sick today and been coughing really badly.I picked him up friday and he had a runny nose and a little cough but today he is a lot worst.
  7. Matchy69
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    24 February 2020
    My kids are both sick and didn't go to school today and can't get into the doctors to the 9th march.The surgery had a possible they would always fit a sick child in but they have more doctors and now dont do it.The next doctor surgery is 40 minutes away and when your kids are sick you dont want to be driving them that far.
  8. monkey_magic
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    24 February 2020 in reply to Matchy69
    Hi Matchy,

    That's really bad having to wait until the 9th March.

    Do you have cold and flu medicine at home?

    Nothing worse than a sick household.

    Hope they recover soon.

    All the best,

    🐒 Monkey
  9. Matchy69
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    24 February 2020 in reply to monkey_magic
    Hi monkey yes got medicine at home for them i just hope they dont need antibiotics.If they sick for 3 days the school will need a medical certificate.Just sucks some times living at here and not many services.
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  10. Matchy69
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    25 February 2020
    I managed to get the kids into a new doctor tomorrow and they bulk bill which is good but they are allmost an hour way.I am all stressed out as i cant find my daughters health care card.
  11. Matchy69
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    26 February 2020
    Feeling anxious and stressed about taking the kids to see a new doctor this afternoon.
  12. Birdy77
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    26 February 2020 in reply to Matchy69
    Hi Mark,

    I hope you were able to find your daughter's health card - are you able to put it in your phone on an app or whatever, like you can with your licence and ither cards, so you don't need to keep track of the actual card?

    I hope you were able to ground yourself and feel ok about the drive to the new doctor.

    Can you treat yourself tonight as a reward for getting theough a stressful day? You deserve it.

    I hope everyone feels better soon.

    🌻birdy
  13. Matchy69
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    26 February 2020 in reply to Birdy77

    Hi Birdy thanks for that advice.I managed to fine my daughters health care card it was under my book on my bedside table.I looked everywhere for it.I am just stressing as i am taking them to see a new doctor and i think they will need it.I might buy myself something nice to eat for dinner afterwards.I leave in 30 minutes.I will let you know how it goes.

    Take care,

    Mark.

  14. Matchy69
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    26 February 2020
    The doctor saw the kids,he said it was just a viral infection and didn't prescribe anything.I needed a medical certificate from monday but the doctor said he will not back date them so he gave me one from today to tomorrow.My ex was not to happy about it but that was the best i could do seeing a new doctor.I know their regular doctor will back date them but two weeks to get in there.
  15. new beginning
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    26 February 2020 in reply to Matchy69

    Hey Mark,

    Glad its nothing too serious. Theres been alot of viral things going around our school atm too. Lots of warm lemon and honey drinks or tea generally do the trick.

    Shame that the doctor wouldnt back date the certificate. We have a really good dr at our clinic whos always booked out weeks in advance too. So frustrating but thankfully you were able to get in.

    Hope your doing well

  16. Matchy69
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    27 February 2020 in reply to new beginning

    Hi new beginning yes its good the Doctor only thinks its something minor.My neighbour who use to be a nurse said she thought it was whooping cough as her son had it.My kids have been vaccinated against it.I am worried about the High School not having a medical certificate from monday as she is in her last 2 years and they are strict about those things now so i hope the one i got will do.

    Take care,

    Mark.

  17. Matchy69
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    27 February 2020
    Hi i went to both schools today and handed the medical certificates and they were happy with them and know how hard it is to get into the Doctors there.I have more doctors there now but now you have to wait 2 weeks and dont think the town has expanded that much.Not sure why their is such a wait.
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  18. new beginning
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    28 February 2020 in reply to Matchy69

    Hey Mark,

    How are you holding up? Kids doing better?

  19. Matchy69
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    28 February 2020 in reply to new beginning

    Hi new beginning my daughter was back at school today but my son isn't and he is still coughing but seems to have plenty of energy.Hopefully i can get him back at school monday.I have a headache myself and feel very tired but thats normal for me.

    Take care,

    Mark.

  20. new beginning
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    28 February 2020 in reply to Matchy69
    Thats great news about your daughter and fingers crossed your son continues to improve. Hope you get chance to relax with a nice hot cuppa and rest your head
  21. Matchy69
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    29 February 2020
    This morning when my son wakesup says you know what i am dreaming about and he says having his birthday today even though its not for another week and half and says make his cake now and have his presents now and i said no not to next week and he started to cry so i went through the DVD cupboard axnd grabbed one that he hasnt watched wrapped it and gave it to him and made him cupcakes for him and he was happy.That was after a terrible night where i was in extreme pain from a medical condition i have.I hope he dosnt want to celebrate his birthday again tomorrow.
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  22. Matchy69
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    1 March 2020
    My daughter seems to be just fully recovered now.My son still has a cough but seems to have plenty of energy.He is not coughing as much but does sound nasty when he does cough.
  23. Matchy69
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    1 March 2020
    I think the kids will be right for school tomorrow.My daughter will probably say she is sick tomorrow morning,it will be just her anxiety.
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  24. new beginning
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    1 March 2020 in reply to Matchy69
    Thats great to hear. How are you holding up?
  25. Matchy69
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    1 March 2020 in reply to new beginning

    Hi new beginning.I havent been to good myself.I am in a bit of back pain today but i will survive.My daughter just ironed her school uniform for school photos tomorrow so hopefully i dont have any drama getting her to school tomorrow but looks good so far.

    Take care,

    Mark.

    1 person found this helpful
  26. Birdy77
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    2 March 2020 in reply to Matchy69
    Dear Mark,

    I just read your post about grabbing a dvd your son hadn't watched, wrapping it up for him and making him cupcakes because he wanted his birtgday that day ! You are a terrific Dad 😃 i LOL'ed at "I hope he doesn't want to celebrate his birthday again tomorrow." Did he?

    (Thanks for the laugh).

    Sorry you're not in the best of health at the moment, i hope you feel better soon.

    🌻birdy
  27. Matchy69
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    2 March 2020 in reply to Birdy77
    Hi Birdy no he didnt want his birthday on sunday so i didnt have to make him another cake.But he thinks his birthday is this thursday when it is next thursday.He will be going down to his grandparents this weekend with his mother for an early birthday with his grandparents.I will have this weekend off.
  28. Matchy69
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    6 March 2020

    My kids didnt go to school most of the week and they have been at the mothers.She just text me and said the doctor has prescibed Asthma mediction and allergy medication as she thinks she has them and she put her on birth control.

  29. Matchy69
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    10 March 2020
    My son won a second prize at the show for his poster called My Country.
  30. Matchy69
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    10 March 2020
    The school wants to drop my son level down from grade 3 that he is in to grade 1.Thats probably because they send him home at lunch time and is so far behind now.

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