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by Eagle Ray
17 Jun

Topic: struggling with special needs children

  1. Matchy69
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    Matchy69 avatar
    7368 posts
    3 March 2022 in reply to Hanna3

    Hi Hanna my daughter at TAFE is doing well though last Friday was washed out and had to pick her up in pouring rain with roads flooded everywhere.

    My daughter is over due by 5 weeks now has been in hospital with a kidney infection.The hospital still dosnt know what they are doing.My sister in-law who is midwife is shocked by this.

    I have some other exciting news my daughter's twin sister is now pregnant and is due in September.I hope she has an easier pregnancy then last time.

  2. Matchy69
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    7368 posts
    3 March 2022
    Having major panic attacks now with my special needs child stuck at school as his mother decided to go into town and is now can't get back to the town with my son is in and I am flooded in here as well and their is more storms forecast.I am so worried how he will cope if we can't pick him up.
  3. Sophie_M
    Sophie_M avatar
    6816 posts
    3 March 2022 in reply to Matchy69
    Hey Matchy69,

    We're sorry to hear you're having panic attacks. Is anything helping you through them? We do have some guided breathing exercises you can listen to here, in case it would be helpful to get you through these moments of panic. 

    If you'd like to call our counsellors to talk you through it, we're here for you on 1300 22 4636. We can hear it's an incredibly stressful time, and we're sorry to hear that you're affected by the floods.

    Thanks for sharing here. This community is here for you. 

    Kind regards, 

    Sophie M
    1 person found this helpful
  4. Hanna3
    Hanna3 avatar
    3624 posts
    3 March 2022 in reply to Matchy69

    Hi Mark

    I'm sure the teachers and staff at your son's school will be taking good care of your son.

    Gosh these are difficult times. No wonder you are feeling panicky. Look after yourself and if you can contact the school perhaps they can reassure you about your son.

    Keep in touch with people here on BB. Make sure you are OK. Thinking of you in these difficult times.

  5. Matchy69
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    Matchy69 avatar
    7368 posts
    3 March 2022
    The roads still flooded and closed.We rung the school but their is nothing else we can do at the moment.And make things worst it is thundering here and anymore rain will close it for the night.I just feel so panicky and scared.I am just shaking.What will help my panic attacks would be the road opening.I can't even remember what I was taught to do when I am having a severe panic attack.I am trying to do some heavy breathing exercises.
    1 person found this helpful
  6. Hanna3
    Hanna3 avatar
    3624 posts
    3 March 2022 in reply to Matchy69

    Hi Mark, what did the school say to you? Your son will be kept safe I'm sure. I understand you are very worried.

    Deep breathing from the abdomen I find helps... slow your breathing and concentrate on that. I'm sorry you're having such a worrying time.

  7. Matchy69
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    7368 posts
    3 March 2022
    Just to let you know we had a 15 minute just 4pm.to get through and a huge storm came and it got closed again.So we managed to get my son and we all home and safe now.It was such a worry as a special needs child is not the easiest to handle in a situation like that and his medication is due a 4pm.It is such a relief for me now.
    1 person found this helpful
  8. Hanna3
    Hanna3 avatar
    3624 posts
    3 March 2022 in reply to Matchy69
    Great news Mark! I'm glad your son is safe home and well. 🙂👍
  9. Hanna3
    Hanna3 avatar
    3624 posts
    21 March 2022 in reply to Matchy69

    Hi Mark,

    I don't know if you are still around here - just wondering how things are with your family and you? I hope everything is going OK. Best wishes!

  10. quirkywords
    Community Champion
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    • A member of beyondblue's blueVoices community
    quirkywords avatar
    14677 posts
    31 March 2022 in reply to Matchy69

    Mark

    how are you.?

    How is the weather near you.

  11. Matchy69
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    Matchy69 avatar
    7368 posts
    27 April 2022

    I was very nervous on ANZAC Day my son marching with the school in the parade.He was well behaved and didn't yell out during the service.My son has been a bit rebellious lately and angry out times.I don't know if it's because the specialist changed his time of medication for him trying to see if it changes his tiredness but it hasn't.

    My daughter did get put on the DSP which is a real relief.

  12. Hanna3
    Hanna3 avatar
    3624 posts
    27 April 2022 in reply to Matchy69

    Hi Mark,

    Good to see you here again, I've been wondering how you all are!

    How good that your son participated in the march, did he feel proud of himself? I hope so!

    Also great news that your daughter was successful with the DSP, they've made it so difficult for people now, and if people don't get it they're stuck on the pathetic unemployment benefits.. Such a relief for her and you!

    How is her course going and is she still doing volunteer work with the local RSPCA?. I hope you are keeping well and that your garden is enjoying the rainy weather we've all been having for a while now.

    Best wishes! 🙂

  13. Matchy69
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    7368 posts
    1 May 2022
    My son had really struggled with his moodiness and anger since the specialist changed his medication.So we made a division to change him back to the old medication and seems to have improved.He did not have a very good week at school last week which made us make the change.We are also thinking of changing his specialist if we can.I am not sure what other ones are available out here.It has been a struggle for me and my depression has gotten worst.Hopefully my son improves and will be one less thing to worry about.
  14. Hanna3
    Hanna3 avatar
    3624 posts
    1 May 2022 in reply to Matchy69

    Hi Mark,

    That's good that your son is improved on his previous medication - at least you know not to try that same change of meds again... and hopefully he will settle down again now.

    How is your daughter doing with her course about animal care?

    I hope you feel better yourself soon too!! Best wishes...

  15. Matchy69
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    Matchy69 avatar
    7368 posts
    5 May 2022

    I am still struggling with my son.He didn't have a good day today at school and this afternoon had some test at the speech pathologist.He sees the specialist in a couple of weeks.Not sure if she will be much help.We will see if we can find a different one for another opinion and different approach.

    My daughter's got tafe tomorrow and has been enjoying it.She changes next week to a Wendesday class.She hasn't started at the RSPCA yet l.She got an email for the orientation.Their is so much happening and the RSPCA is so far away and just trying to find time to do it.

  16. Hanna3
    Hanna3 avatar
    3624 posts
    6 May 2022 in reply to Matchy69

    Hi Mark

    I hope things improve for your son. A second opinion might be a good idea.

    I'm glad your daughter is enjoying her course, working with animals sounds like a career that would be very satisfying for her.

    Good to hear how things are going with your family. 🙂🐶

  17. Matchy69
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    7368 posts
    14 May 2022

    My son goes back in a week to see the specialist.We will see the same one as my son isn't doing to good and we need to see someone soon as possible and I know new one will be a wait to see.

    My daughter was suppose to do her orientation today at the RSPCA but had to be cancelled due to the roads being flooded.We will work at another day soon.You just do it online to book it.

    I got scared after having a near miss in the floods.It is so wet here now and I am finding it depressing.

  18. Hanna3
    Hanna3 avatar
    3624 posts
    14 May 2022 in reply to Matchy69

    Hi Mark,

    I'm inland in NSW and we have had almost no rain here, but I know people in Lismore and Ballina who were very lucky to be all right in the recent dreadful floods.

    Constant rain is depressing as you can't get outside and do much - I hope it's not damaging your vegetable garden.

    Good idea to go with the same specialist for your son if he's struggling, rather than risk a long wait. Your daughter must be disappointed that her orientation was cancelled, but I'm glad she is not having to travel in the bad weather on the roads..

    I hope things dry out for you there soon! We actually need more rain here, it's a shame it rains where it isn't needed and other areas remain dry!

  19. Matchy69
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    Matchy69 avatar
    7368 posts
    19 May 2022
    It's been a very long week as I had to rush my so to the hospital as he had suspected appendicitis.After a few days in hospital we finally could come home.Was a very draining experience on us.The lack of sleep really takes its toll on me.
  20. Hanna3
    Hanna3 avatar
    3624 posts
    20 May 2022 in reply to Matchy69

    Hi Mark,

    Is your son ok now? Was it appendicitis?

    I wonder if he was feeling unwell when you were having trouble with his behaviour - could that have been contributing to it?

    Glad you're all safe home again! 🙂

  21. Matchy69
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    7368 posts
    20 May 2022 in reply to Hanna3
    Definately nothing to do with his behaviour.He had severe pain where his appendix is.Might be back at the hospital tomorrow or tonight as the pain is still there.
  22. Ggrand
    Community Champion
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    Ggrand avatar
    10013 posts
    20 May 2022 in reply to Matchy69

    Hello Dear Mark...

    I am sorry your son has been unwell...

    Just popping in to wish both you and your son the very best and hope he gets well soon.....

    Kind thoughts with my best wishes and care..

    Grandy..

  23. Hanna3
    Hanna3 avatar
    3624 posts
    20 May 2022 in reply to Matchy69

    Hi Mark, I meant his behaviour might have been partly due to him feeling unwell or uncomfortable.

  24. Matchy69
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    Matchy69 avatar
    7368 posts
    21 May 2022 in reply to Hanna3

    Sorry Hanna I see what you mean now.Anything is possible and won't rule it out but my feeling and knowing my son says probably not.Always good to have these other point of view.

  25. Matchy69
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    Matchy69 avatar
    7368 posts
    21 May 2022 in reply to Ggrand
    Last night my son started vomiting again.We have an early doctors appointment and maby back at the hospital depending on what the GP thinks.
  26. Hanna3
    Hanna3 avatar
    3624 posts
    30 May 2022 in reply to Matchy69

    Hi Mark,

    I'm so sorry I haven't been here for a while! How is your son, what happened, did he need to have his appendix removed?

    How is your daughter going with her course?

    Are you getting this dreadful cold weather and wind where you are, or are you far enough north you're not affected by it?

    I hope you and your family are OK, again my apologies for not being here sooner.

  27. Matchy69
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    Matchy69 avatar
    7368 posts
    31 May 2022 in reply to Hanna3

    Hi Hanna after almost a week in hospital the surgeons were happy for him to go home and did not require surgery.He seems back to normal now.

    My daughter is enjoying her course and is coming up to the halfway point.She has rebooked her orientation at the RSPCA in two weeks time.

    Freezing here today with the wind.Nice inside withe the fire going.But I have noticed I need to do a repair to it so I will try and do that tomorrow.

    My doctor's surgery seems to be in trouble with most of the doctors leaving and the nurse who's been there for years leaving.Impossible to get an appointment there now.

  28. Hanna3
    Hanna3 avatar
    3624 posts
    31 May 2022 in reply to Matchy69

    Hi Mark,

    That's such good news about your son and your daughter! I'm glad to hear your son has recovered and your daughter is enjoying her course so much!

    Do you know the reason for the staff leaving the doctor's surgery en masse like that? It's difficult at the best of times to get a GP appointment in rural areas.

    We have sleet here this afternoon, but I braved a long walk with my dog this morning, I enjoy walking in cold fresh weather, but by this afternoon it really was too cold with a freezing wind, to go outside - we are staying warm inside with the heating on now!

    I hear on the news it's cold right up into Queensland. My part of NSW is always very cold in winter, but today is ridiculously cold, mostly because of the strong wind.

  29. Matchy69
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    7368 posts
    7 June 2022
    It's been a long couple of weeks.My children's mother has covid and is very ill with it.We have all tested negative here.My daughter has her RSPCA open day on Saturday but might have to change it again.My son has sports day next Tuesday and is excited about that so hoping he can go.Its been a very stressful time for me.
  30. Matchy69
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    7368 posts
    16 June 2022

    My daughter is very excited today as she has her first shift at the RSPCA this afternoon.I am feeling a bit nervous and anxious and I am sure she is to.I will stay in town after I dropped her off as by time I get home it will only give me a hour before I have to go and get her.Might go to Bunnings for a look.I am not much for walking around shops so will get bored pretty easy.I don't have much money this week to spend.To many things I need to pay for and now I need to put a new starter motor in the car as well as new tyres and rego.

    My son had his sports day on Tuesday and competed in everything.Finished last in everything but had a go.He got tired and cranky at the end of the day.One more week and it's school holidays again.

    1 person found this helpful

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